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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I'm just getting very frustrated. I'm
sitting here in bed not able to excersize, and you all know that kills me. But my specialist says my weakness is not from the mg. So, I conquered mg, and was able to ski, but now this heart problem had me sitting back down. I guess I'm just confused at what this new problem is. The cardio said the abnormal heartbeat is not deathly or anything, which is nice? Yet what is it. I'm not living with the chest pains and weakness for the rest of my life. But he said he doesn't know what it is. So. How to deal? I'm not sure. I'm laying in bed waiting for them to come get me for the echocardiogram, and if that looks ok I'm going home...so I don't know what to do then. But will cross that bridge as it comes Hope your all well. |
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