Thanks for the welcome, Koala77. Where in Tassie are you? I'm at Orford on the sunny east coast. I am so pleased to have found this forum and have access to the wealth of info that others have gained from their experiences.
Marian

Hi Melisma,

I don't have geographic tongue, but mine is sorta odd looking from the MG.

It sorta looks like this, but a bit more pronounced (only when I'm weak,though).

http://neuromuscular.wustl.edu/pics/...pfurtongue.jpg

It basically looks sorta flat at the edges, and fatty in the middle. There are sorta two little bumps of fat. When I'm strong, though (usually after a plasma exchange), it looks normal.

It's also very pale-looking when it's weak.

Welcome, btw!

Nicky

Thanks Nicky, for the welcome and for taking the trouble to respond to my question and finding a link.

Mine looks like that only worse with a lot of brownish discolouration in the middle (I had a link to a pic of what mine looks like but I don't have enough posts yet to be able to include a link).

Having now read up on 'geographic tongue' on a number of websites I'm not too worried. Seems it's effect is self-limiting and doesn't really cause any problems. I just don't like the look of it and knowing this horrible looking thing resides in my mouth. Nowhere in my reading have I seen a reference to MG in relation to 'geographic tongue' but since this has occurred along with what I think of as 'wooden tongue' I am sure that the two go together somehow.

Cheers, Marian

Welcome, Marian. I hope your summer wasn't too hot there.

Geographic tongue can also be a sign of Celiac Disease. It could be from allergies (contact or systemic) too. Have you been tested for that? The antibodies for that are: Reticulin, Gliadin, Endomysial and Tissue Transglutaminase. Plus most GI docs will run an IgA too because if it's low (or high) it can affect the results.

The internet is great for looking things up but nothing is a substitute for good doctoring. Please do not try to figure this out on your own. A neurologist will look at something from their perspective, a dermatologist from theirs and other docs from their own specialties. Until a doctor gives you an answer, backed up with facts, you need to bring it up.

Never assume a new or different symptom is from MG. It more than likely isn't if it's not related to fatigable weakness. I hope you and your docs can figure this out.

Annie

Thank you Annie, we have had a wonderful summer and still seem to be having it.

Yes I have read of the relationship between geographic tongue and celiac disease, for which I haven't been tested but have no other symptoms that would indicate it. I am familiar with it as one of my sons is so affected.

I agree with you that one should not substitute the internet for the doctor and will discuss these issues with him when next we meet (I keep adding things to my list!)

Thank you for your concern and advice, it is much appreciated.

Cheers, Marian

I wanted to add one more thing. I don't know if your ancestors, a LONG time ago, were English (from England) or not. But there is a high prevalence of celiac disease in Northern Europeans. I would highly suggest that you and your son get tested, since you can have absolutely no symptoms of CD and still have it! Lovely. That and the fact that it runs in families and is quite common, unlike some other autoimmune diseases.