At this point, I really don't know if I'm getting too much, or too little, or if it's making no difference at all.

The first time I tried taking it every three hours, I got weak and collapsed, so I assumed it was too much. Later I started thinking that may have been a coincidence, so I've been taking it every three hours (4X/day) for the past three days, and I'm fine--no collapsing. No significant improvement, either.

I am journaling my symptoms. I definitely feel them at about three hours or so after the last dose. On the other hand, I feel them in between doses, as well.

I would think the Mestinon is doing nothing, only thinking back to before I started taking it at all, I have to think I'm improved. There was a time when I rarely could cook dinner, since late afternoons were so bad--now I cook most days. And I've had no double vision since I started the Mestinon--on the other hand, I only had double vision for one day before (that's what scared me into moving up my neuro appointment, and I got the prescription).

I'll keep journaling my symptoms. My hopes were probably just too high--I was hoping I could "Live a Normal Life" (oh, I am starting to hate that phrase) on the Mestinon. But my weak neck, tiltiness, and periods of exhaustion are still really holding me back.

Your comments and experiences are welcome! Does anyone else notice that rainy days are the worst?

Thanks, everyone,

Abby