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Old 03-17-2010, 10:19 PM #11
Shari_W Shari_W is offline
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Shari_W Shari_W is offline
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Quote:
Originally Posted by DesertFlower View Post
Annie,

My pulse gets high also when my MG is bad. I talked to my neuro about it and he said it has nothing to do with MG, that I should go to my general doctor to get it checked out. I know it is the MG, it is very obvious, it only happens when I push myself and this never happened to me before MG.
So I am going to go to my regular doctor and see what they say, although it is very unlikely they will see the high pulse, but at least I will have it documented by a doctor that I am reporting this symptom (I am thinking about future application for disability).

Thanks
Good thinking DesertFlower,
You need to put down EVERYTHING in detail when you apply for disability. I hope you get better and don't have to apply but just in case you do, at least you will have it well documented.

Blessings,
Shari
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Old 03-18-2010, 11:16 PM #12
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tysondouglass tysondouglass is offline
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Shari- Thanks! Im also happy i got in. Exciting. Yet going back to school can always be a very positive experience!

But, yes my MG Doctor, and my physician both know about me excersizing, and BOTH APPROVE. My MG doctor. (Dr. Juel- From the Duke Myasthenia Clinic, says that Im doing GREAT mg wise and can excersize from his view. Yet im a little confused at why he says that cus at the end of the day its hard to wash my face. or brush my teeth. But oh well, im going to trust him! But, I did have a heart monitor on for the past two days again, trying to catch this thing.

Thanks for your concern!

Nicky- I only take 60 mgs, 3 times a day. Usually when i wake up before i eat, and then after lunch, then before dinner..
In reality, i would love for it to just be my MG, for it woudlnt have to be anything else...yet. This specialist thinks that It it something other than MG, because my heartbeat also goes irregular, skipping beats alot. So Im going to see a cardio the 14th at Duke and hopefully getting more answers.

Thanks for your concern aswell!

Desert Flower- Thank you very much! Yeah im trying...not getting all my homework done, it tires me out too much. yet Its fine.

Thanks joan, I hope to get into UNC aswell.
Like i said up above, i went to my physician and got her to do a chest xray, and then she put the heart monitor on again, so i had that on the past two days.

But, ill keep u guys updated!

Abby- Phew, this is getting exhausting But, they havent ruled it out yet, i will mention it to my doc again. Thanks.

Thanks rezmommy!

Annie- check your inbox.
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