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Old 03-23-2010, 07:45 AM #1
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default bad day

Hi, everyone. Last week I had five good days in a row, and I figured the Mestinon was finally doing its job. I thought I was being careful not to overdo it, but I certainly did more than I've been doing.

Yesterday was awful. Suddenly, everything was back. For a couple of hours in the evening I couldn't even walk. Last week I took the kids to a museum.

So, what's up with that? This is all new to me. Do you find that after a while you can figure out what causes good days and bad days? Or do they just come out of the blue for no apparent reason? My five good days were sunny spring days, and yesterday was pouring rain, so maybe that's it. Or maybe I did overdo it, and the effects piled up on me. Or maybe for some reason I got a surge of antibodies. I have no idea.

Would anyone who's more experienced with this disease than I am like to share what they've figured out? I mean, even if the triggers are different for every patient, do you figure them out after a while? Or at least some of them? I was so relieved to finally know what is going on with me, but now I'm confused again.

Thanks,
Abby
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