Babs,
Thank you for sharing your story. It certainly brought tears to my eyes. Many hugs to you and your familiy on the loss of your mother.

I haven't posted much yet and MG is very new to me, although the neuro ophthalmologist first mentioned it 7 years ago. I now have a tentative diagnosis of MG and have been on Mestinon for less than a month.

I don't know what the future holds, but I do know what a difference it makes to be able to come to this support board.

Cate

Pickingupthepieces - Welcome!!

I am very sorry for your loss. While each of us has our own grieving process that must be endured - the happy memories are what get us through. Your mother sounds like she was very active and able to enjoy life to the max - before getting MG.

I'm glad you found this group and hope you will continue to visit and share. Like others here, I'm still learning about this constant companion called MG. I have a hate/hate relationship with it - and even so, it stays. And I continue to try to figure which of life's lessons I'm supposed to be learning from it. (Probably things like patience and acceptance, so I imagine I'll be at this awhile!)

Again - welcome, Babs

Sue

Cate, thank you so much. I am so sorry about your diagnosis and do hope you are seeing some changes since you've started Mestinon. This board is a great place to come for encouragement, support and education, isn't it? It seems that so much of this is trial and error when it comes to medication...and the patient has to be SUPER pro-active in their care. I know you will learn a lot with all the knowledgable and experienced people here.

Sue, I understand that hate/hate relationship re MG. I detest it. Those life lessons are so tough... but I know you will learn and grow and be able to help others through this. How long have you had MG? I laughed when you mentioned patience and acceptance. One time I was in a Bible study where someone asked us to pray for her to have patience....we all gasped in shock! She looked puzzled and we told her "Don't EVER ask for patience, because then yours will surely be tested and that's NOT good!" It was pretty funny. Pray for patience...and hurry up! Right?

The memories of my mother---and my dad!---are so precious to me and I cherish them so much. She was a trooper, too, even after her diagnosis. She never complained---and never once shed a tear for herself. She was brave to the very end. We had some incredible moments with her in the days before she died. We sang, we spent time with her and she shared an incredible dream or vision which provided peace, assurance and hope to all of us. Her life touched so many and we will ever forget those moments with her...they were life changing.

Thanks, again, to both of you for making me feel so welcome. This is a safe place---a good place to come when you need it.

Hugs and Joy-Babs