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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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I can totally understand what you are saying regarding your mother and then your friend who was diagnosed with MG in the late stages of cancer--that is awful! I hope your mother has someone close to her who can go to doctor's visits with her. We all need an advocate, don't we? It is disconcerting to read here and see how LONG it has taken some people to get a diagnosis...unbelievable! I read of one person where it took 7 years!! Are you in NC? How long have you been diagnosed? My prayers are with YOU, dear one. MG is certainly a tough...tough disease. I know you value your good days! Hugs and prayers to you....Babs OH--to ALL. SO sorry about my double posts above! I thought I had lost the first one, so I re-wrote. Now you've got two versions of the same thing! LOL. Some days I'm more ditzy than others! I do have one question. Do any of you with MG have other family members with it as well? My mother and I were very similar and both suffer(ed) from psoriatic arthritis (auto-immune right there!). I told my husband when Mom was going through all this, that I had this feeling, this fear that I would end up w/MG one day. THEN...a few nights later, my brother had a dream that another family member was diagnosed. I am sure these are just thoughts/fears, etc. from the shock and trauma of this quick ordeal. But...just wondering about genetics and MG. Going to check it out.... |
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