Abby,

I wanted to add to my previous entry.

I am still learning about MG and Mestinon, and I am glad you have joined this group. Please continue to share your experiences since we all learn from each other.

I have learned what Mestinon dose helps me for a regular day, but I have not figured out how to deal with these days that are different, days when I am tired, days when I work extra, or days when I feel sick. I think that I may need occasional changes to my Mestinon but I haven't figured out what works yet.

Sometimes when I relax all day I feel like I am taking too much Mestinon, yet I still take it regularly. Maybe on these slow days I should take less?

Also, I have noticed the monthly hormone cycle has a big effect on how I feel and I wonder if I should be adjusting the Mestinon for that since there is about 1 week in every month where I am finding that I feel pretty good and that is the time when I get Mestinon overdose feelings. Also there is another week every month that I feel bad and probably need extra Mestinon.

My doctor insists that I take Mestinon regularly and only change the dosage rarely and if I am absolutely needing more or less. He wants me to stick to a schedule no matter how I feel, unless of course I am getting overdose symptoms or getting so bad that I have to stay in bed. I am following his orders for now, but realizing that he might be wrong.

He has given me an okay to adjust my dose when needed, so I am considering taking a little extra when I feel bad and possibly a little less when I feel good even though this isn't what he intended.

I am still learning.