I've been wondering whether to switch to a new neuro--the MDA recommended one who specializes in neuromuscular diseases (there's not an mg specialist in my area). But I'm worried that since there's no lab evidence that I have mg, a different doctor will take away my mestinon.

So, I saw my present neuro today, and he is sending me to the very doctor I had wanted to see--and I didn't even have to ask for a second opinion. It was his (my current neuro's) idea. He said he doesn't want to start me on an immunosuppressant drug without getting me evaluated by an expert.

That makes sooo much sense. It also gives me more confidence in my present neuro.

He also told me I can take five 60-mg pills of Mestinon a day. I told him that they only work for two and a half hours--I have been taking them every three hours, so that leaves me with a gap of almost an hour, between when the old pill wears off and the new pill kicks in. He says I can space them closer together--as close as every two hours if I want.

From what I've read here, that's a bit unusual, isn't it?