Are you sure you don't have the results. They are often required to attach them, like tuck them into the sleeve of the results. Or on the disk in a separate file.

No, they burned the disk right away and the lady told me they would be read and reported on by tomorrow (today) and given to my Neuro. So all I have is the disk. I think it's hilarious I may have to go back in for a neck MRI since the silly insurance co. wouldn't approve it the first time around without a peer to peer interview with the dr. She's been out of town til today... Not sure if I should expect to hear today about the results or if she won't say anything til I follow up with her in May.

Just for fun, here's the findings from my last head/neck MRI in 2008.

Findings- There is no acute infarction, acute intracranial hemorrhage,
hydrocephalus, intra-axial mass, mass-effect or abnormal extra-axial
fluid collection. The cerebellar tonsils are in a normal position.
There are no white matter lesions suggestive of demyelinating disease.
There is no abnormal parenchymal or leptomeningeal enhancement. The
mastoid air cells and paranasal sinuses are clear where imaged. A few
mildly prominent high internal jugular chain lymph nodes are present
in the neck. Physical exam correlation would be beneficial for further
evaluation of this area.

Impression- No acute intracranial abnormality or MR findings of
demyelinating disease

See? Pretty dull. Any idea what the lymph node thing is? Nobody ever mentioned it to me. I just noticed that in the report. Allergy?

Jaime - no to muscle relaxers! They will make your vision so much worse! I had been given them for my fybromyalgia and all of a sudden my double vision was terrible. Had to wear my patch! My vision was blurred I was afraid to drive even short distances. Something else that will do the same thing is Lyrica. It doesn't do it to all who take it, but it did me. good luck.

Yeah, regardless of what I have, I'm thinking no more muscle relaxers for me! So Kathie, you have been diagnosed w/both MG and fibro? You poor dear. That does not sound like much fun.

I called my Neuro's office a while ago to inquire about my MRI that I had on Monday. The receptionist asked for my info, name, date of birth etc... click, click, click... And then told me she'd have to have someone call me. SIGH. You'd think she could just tell me normal or abnormal? I really was expecting "normal" results. Hopefully they were just busy and didn't want to take the time. At the same time, I'd almost welcome an answer to explain what's up with me.

If I were you I'd ask them to send me a copy of the written report so that you have it for your records and can read it.

I now get copies of all test results. When I got the copy of my chest CT scan I was surprised that the radiologist mentioned something about something on my right adrenal gland (guess it just barely showed up on the scan). Neither my neurologist nor primary care doctor mentioned anything about it. When I questioned them both about it, they told me "not to worry."

I don't know why doctor's offices don't do this as standard operating procedures. My husband gets bloodwork every 6 months, and we have to ask for a copy each time. I like to compare with previous results. When the office calls with the results, they just say "the doctor looked at it and everything is OK." This doesn't give you any indication if any numbers have gone up or down or are close to borderline.

You have to learn to be your own advocate.

I am starting to feel that way now as well Kathy. Especially now that this episode is passing and I am feeling stronger. I am ready to be a force that is to be reckoned with... They called back and said my brain mri was normal. I go back for a follow up on May 10, so I'll get a copy to take with me then.

I scheduled an appt with my primary doc for 2 days after my neuro follow up. Should I ask to be referred to a different neuro do you guys think? Or just a rheumatologist? Or a mental institution?