Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 04-12-2010, 01:53 PM #1
JGenovaGoldstein JGenovaGoldstein is offline
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Question referral nj

My friend is newly diagnosed, MG associated with a myeloma antibody (which she has had for a long time. MG was a surprise.) We need a referral to a local (NJ or thereabouts) MG center of excellence, if one exists. Can anyone help us, please? Thank you. And forgive me if I challenge the etiquette - I have never participated in a forum like this before.
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Old 04-12-2010, 03:28 PM #2
Stellatum Stellatum is offline
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Hi. You can write to the Myasthenia Gravis Foundation to ask for names of specialists in your area: http://www.myasthenia.org/ . Just click on the "contact us" tab.

Abby
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Old 04-12-2010, 04:56 PM #3
iwasanurse iwasanurse is offline
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Quote:
Originally Posted by JGenovaGoldstein View Post
My friend is newly diagnosed, MG associated with a myeloma antibody (which she has had for a long time. MG was a surprise.) We need a referral to a local (NJ or thereabouts) MG center of excellence, if one exists. Can anyone help us, please? Thank you. And forgive me if I challenge the etiquette - I have never participated in a forum like this before.
I also have MG and the Multiple Myeloma antibody(IgA). Good Luck and Best Wishes.
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Old 04-12-2010, 10:16 PM #4
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Default Johns hopkins

I know that Johns Hopkins is quite close to NJ, and they are a great place for MG, one of the best in the country I believe, yet i dont know the names, i could get them quite easily I think if the myasthenia organization cannot produce them. I am going to a college next year near there, and am going to be followed by them.

Hope it works out for your friend
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