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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-15-2010, 10:12 AM | #1 | ||
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Senior Member
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I'm not medically literate enough to know if this is big news or not, but I'm passing on this link: "AAN: Rituximab Effective in Myasthenia Gravis"
http://www.medpagetoday.com/MeetingCoverage/AAN/19555 Abby |
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04-15-2010, 10:25 AM | #2 | ||
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Junior Member
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I know that the first thing my neuro would say about this is that its a good sign but there were only 13 people in the study so it wasn't a very good study.
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04-15-2010, 02:59 PM | #3 | |||
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My neuro proposed me to try Rituximab as I'm refractive to IVIGs and Cellcept, sustained large doses of Pred are not very effective and I have PLEX each 10 or 15 days in the meantime…
One presentation in a Paris meeting in late December gave about the same conclusions (maybe the same study?), but it indicated also that the initial improvement did not last after the first 6 months or so, which was the period of time for the Rituximab injections… I haven't made up my mind yet! Maurice. |
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04-15-2010, 05:38 PM | #4 | ||
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New Member
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I saw that story and was very excited. Even though the study wasn't that thorough and was very short-term, the big news for me is that it involved an existing, already approved drug, not some experimental drug years away (if ever) from approval. I haven't seen anything like this in the 2+ years that I have been following MG. Hopefully his study will continue and we'll get to see what the long-term results are.
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04-15-2010, 07:20 PM | #5 | |||
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Maurice,
I swear...You and I must have the same 'type' of MG....Have you tried Imuran yet? I'm using that now, and am hoping it'll work much better than prednisone ever did.... Nicky |
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04-16-2010, 02:25 AM | #6 | |||
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Hi Nicky,
My neuro told me that since Imuran is in the same class of immunosuppressors as Cellcept, it wouldn't be more effective... http://www.ncbi.nlm.nih.gov/pubmed/18493241 Maurice. Last edited by neutro; 04-16-2010 at 02:56 AM. Reason: Reference added |
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