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Old 04-17-2010, 08:53 PM #1
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Annie- You always write back so quickly, i love it - I guess i agree, its not okay to trust a doctor with my life, which in all reality, i should be able to. But thats life.

I will call my internist and and ask her to do those tests.
I also have a neuro app. on monday, so ill print that out and give it to them.

Do you believe my symptoms? The way you wrote it seems as though you dont believe them, or me. Dont take that personally. I could have misread. Yes i know im on the verge of going to the ER alot. Yet im dont have anyone to TAKE me most of the time for the chest pains. My aunt and uncle only think it is necessary if i am going into a crisis. Its very hard to convince them.

Yet im hoping all it is, is the side affects. Could perphiral neuropathy (from that site you posted earlier, come into the picture? I often have pain all around my body. Not that often though.

Ill also consider a 2nd opinion.

Yet im sorry, that im causing you to beat your head off the wall. You as well as i want to know whats going on. But its hard for me to do all this at 17.


But, thank you very much for all your help annie, and if you cant keep posting, its quite alright, i understand the stress.


Hope you feel okay!
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Old 04-17-2010, 09:24 PM #2
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Eh, now my pulse is at 110 again, and having some chest pains when breathing in.
I know what your going to say, though.
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Old 04-17-2010, 09:29 PM #3
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Omg...I totally just typed, 'What's your Tyson like, Acne?' LOL...I had a moment...

Anyway, Tyson, how bad was your acne? Like all over-your-body bad?

I remember in highschool, there was a guy who had very severe acne...I felt really sorry for him...I could tell he was really embarassed about it...He'd always walk with his head down, poor guy...

Alright, so I must admit, if I had severe acne, I might consider taking this accutane...I'm pretty vain, I'll admit...BUT- I know me, and I'm also super cautious (well, other than my horrid smoking habit, but that's another story), and I'd look into other treatments that didn't have such deadly side-effects.

If I were 17, and I do remember what it's like, it was about 10-years ago, i might not look into the sides so much, so I'm pretty impressed that you're here...That shows that you want to hear about other people's experiences....Very mature, if I can say so...

Anyway, I went off-topic a bit...What if prednisone could take care of your acne? Do you know what happened when I first started prednisone? Absolutely no joint pain, no more rash on my arms, my face seemed less red (blotchy)...These effects persist until today...I got a mild touch of what I thought was acne, but actually turned out to be a skin infection as it cleared up after antibiotics...So I feel like prednisone could work for acne too...

My point is that this medication is just awful...When I was reading those blogs, people were talking about how their dermatologsts were very nervous and resistant toward prescribing this med... Some refused despite their begging...My sister's friend had a bit of acne on her chin which she was obsessive about...She begged her doctor to prescribe this, and he would not.

I can see that you don't want off it. I know you're scared about the acne returning, which is completely understandable. I just really don't like this medicine, that's all...And the things you've mentioned over the months sound really scary, and I have to admit that some of your posts scare me. The nose/mouth bleeds, the racing pulse and not being able to breathe...I mean, I can't say unequivically that this is from Accutane, but because this medicine is so toxic, and lists the very sx as sides that you've mentioned, and causes muscle damage, I can't help but feel that by at least getting it outta the picture, worries about it causing your problems can be put aside. This medicine just complicates the situation when it seems unecessary/not worth it, at least in the context of what it's treating.

Anyway, I will stop bringing it up. I at least want to get this out there in case it helps you in any way. I wish there was a medicine that treated acne without the high price because I know it'd be a rough ride to have MG plus a problem that might be disfiguring.

Nicky
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