[crimsonxstarlet]

Ok couple of questions.

Antiphospholipid antibody syndrome.

I have one test that came back positive but we are going to do another test in two months to confirm. It is another autoimmune disorder. The body attacks part of the blood cell structure. This would mean I am going to be on blood thinners on a permanent basis.

Anyone have experience with this?


I have been on xarelto for 7 months so far because of pulmonary embolisms after thymectomy this summer. Anyone have long term experience with xarelto or other blood thinners?

Any help, advice, suggestions, comments or experience would be greatly appreciated! I have done quite a bit of research already but I have found that our group of MGers have a fantastic wealth of knowledge thank you!

[kiwi33]

Hi crimsonxstarlet

The information here might help you to ask your health care team informed questions about Antiphospholipid antibody syndrome and its treatment; http://www.mayoclinic.org/diseases-c...n/con-20028805.

All the best.

[Joano]

I think there's a class action law suit in process for xarelto right now--there's ads on TV for anyone who has had a bad experience, or died, from using the drug. My daughter's father-in-law lost his battle when he was on it and it caused brain hemorrahages. But on the positive side, my son-in-law took it for 3 months after a surgical procedure on his knee when he developed some breathing problems. He's fine now and his doctors really wanted him to try it rather than one of the older drugs.