Kathie,
I am seronegative. I was diagnosed on the basis of a positive SFEMG and clinical observations. Does your dr do the tests on your muscles to see how weak you are and if it is proximal or distal weakness? My dr would spend a lot of time doing this but he would also listen to how I described my weakness after different activities. I took a photo of my eyes at the end of the day so the dr could see how bad the droop was in both eyes. I know that getting the right dr is the key for you so I will be sending good vibes your way. ~ Melanie

Melanie: The doctor didn't discuss the sfemg with me except to say it didn't show any progression of the disease into my body. He didn't discuss "promiximal or distal weakness". In fact, he doesn't spend much time at all discussing anything. I do wonder how the results can be trusted when I am on Prednisone and Cellcept. I also take Mestinon, but didn't take it the day of the sfemg. I am going to have to take this further by asking for a consult for them to just sit and explain all of this to me. Thanks for writing.

http://neurotalk.psychcentral.com/thread120198.html

Kathie, I'm confused. Did you have yet another SFEMG after this thread?

A consult with your neuro sounds exactly like what you need.

Annie

Annie: No I haven't. It was three weeks ago and was my 2nd one in 15 months. The first was for diagnosis purposes and the 2nd was to see if the disease had progressed to my limbs because I was complaining of weakness and heaviness of the legs. My legs feel like they don't want to support me. Kathie