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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-08-2010, 04:17 AM | #11 | |||
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A paper recently published indicates that Cellcept might be effective after all…
http://www.ncbi.nlm.nih.gov/pubmed/20405499 Maurice. |
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08-15-2010, 12:42 AM | #12 | ||
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Junior Member
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Hello!
I'd like to ask you about time ,when you first started CellCept. Did you have problems,like more prone to infections,headaches etc? Did you take Prednison and how much at that time? How soon you simptoms started to improve? Thank you,I hope you cope with the heat and stay well at this time. Anni's mom |
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08-16-2010, 07:02 PM | #13 | ||
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I do not take prednisone daily. I have taken it on 2 occassions for 1 week at a time. It took me over 3 months to see an improvement with CellCept. I never had headaches.
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11-04-2011, 01:09 PM | #14 | ||
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New Member
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Hello, I am also new to this site. My husband has MG, was once on Celcept which his Dr's in Charlottsville Va. kept him on for 2 years, along with IVIG infusions. At one point, the Dr's decided to withhole the IVIG to see if the Celcept would take over, they then changed him to Immuran...he has been on this for 1 year and can see a great improvement in him over the celcept. I'm not sure he will ever be able to be taken completely off the IVIG infusions, but as he approaches retirement, I find that I may have to work many years longer so my health insurance will be primary over SS.
My husband also has the double vision and have extensive testing at UVA, it was determined there is nothing they can do about that. As a caregiver, my heart breaks to see a man who was so robust be brought down to his knees. Blessings on your journey Quote:
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11-22-2011, 08:56 PM | #15 | ||
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Junior Member
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Hi
for me, cellcept would only work in combination with steroids. I am now on imuan because of the effects your husband is experiencing and also after 2 years on steroids my mental health deteriorated. when I got off the steroid and stayed on cellcept after around 3 months it quite working. The imuan only gives me small results but better then nothing at this point. everyone is different so only your body can tell which is the best for you. I was reading that once you get stabilized on steroids if cellcept is introduced the steroid dose can be smaller, which would give less side effects good luck |
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11-23-2011, 07:33 AM | #16 | |||
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I have been off Imuran for 2 weeks and feel better than I have in 6 months. I worked in yard for 2 straight days and NO NAPS! I am on Cellcept and 20mg of Prednisone now slowly increasing each.
Mike |
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11-23-2011, 12:15 PM | #17 | ||
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Junior Member
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Does the Immuran give anybody leg aches and what did you do about them?
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11-23-2011, 02:29 PM | #18 | ||
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Junior Member
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good to know it might be because of Imuran. randy |
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11-23-2011, 04:24 PM | #19 | |||
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I had terrible cramps in my feet and ankles.
Mike |
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