Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 06-25-2010, 11:11 AM #1
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Default end of the line

I saw my MG specialist today. He says there's not enough evidence that I have MG to treat me with anything but Mestinon, and there's nothing else to test me for. I could go to the Mayo Clinic, but he doesn't think there's much chance they'll be able to diagnose me, either.

This is not as bad as it sounds, because I'm feeling better these days. My neck is much improved, to the point where it's almost a non-issue (but I know neck symptoms come and go). My truncal weakness is improved, too, these past two weeks since I started taking the Mestinon again.

I am doing all the general things,too--rest, nutrition, very light exercise, stress reduction. If I don't get worse, I may be one of those myasthenics who gets by on Mestinon. If I get worse, I guess I'll go to the Mayo clinic.

Abby
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