Originally Posted by DesertFlower (Post 669857)

Leave it to Erin to give us all a bit of happiness.

My good new is this...maybe I am going into remission or maybe I am just having some good days. For two weeks now I have had to cut down on my Mestinon due to overdose feelings (cramps and twitching in my muscles)...and I continuously am feeling better, althought the MG is far from being gone.

Yesterday I went out with my kids harvesting Saguaro fruits, one of my favorite things to do. Couldn't go last year because there was no way I could balance walking in the desert, I could barely walk on a smooth surface without falling over...but yesterday I was fine and was even able to use the 10 ft stick to pull the fruit out of the cactus. Last year I could barely pick up small things or brush my hair let alone reach my arms above my head with a 10 ft pole. Hooray! I hope it lasts and even if it doesn't I am so happy to be able to go out and do something fun with my kids.

I noticed yesterday that I am actually sitting straight in my chair and standing up tall - this may sound silly, but I have been slouching and not able to stand up straight for over a year now - this last week has been great (the week before, when I started needing less Mestinon, I was not good because I was in extreme pain from the muscle cramps, I thought I was going to have to go to the emergency room it was so bad).

Thank you Erin! I look forward to reading more good news from everyone, and I hope everyone experiences a few good days with their MG.

:D

Originally Posted by redtail (Post 669951)

Hey Erin, what a great idea THANKYOU

I had a wonderful day yesterday, after 3 very bad weeks of in and out of hospital 3 times, and loosing about 6kilos in weight, it was nice to have a great day.

I went to a luncheon at the Neurological Council of Western Australia. It was a day to meet the whole gang, from Perth Bunbury and Albany, and hear what the future holds. I have had them looking after me for a couple of years, and they are an invaluable group to help out all people with neuro problems.

I was interviewed by the local paper as part of the story. But the best thing was offered to help out in any way I could, they were so happy that I did and will get in touch with me soon to start working out how I can help out.
Iam just sooooo excited to be able to maybe help people out who were once like me...

Don't think I have been this happy for a while :-)

Originally Posted by redtail (Post 669951)

Hey Erin, what a great idea THANKYOU

I had a wonderful day yesterday, after 3 very bad weeks of in and out of hospital 3 times, and loosing about 6kilos in weight, it was nice to have a great day.

I went to a luncheon at the Neurological Council of Western Australia. It was a day to meet the whole gang, from Perth Bunbury and Albany, and hear what the future holds. I have had them looking after me for a couple of years, and they are an invaluable group to help out all people with neuro problems.

I was interviewed by the local paper as part of the story. But the best thing was offered to help out in any way I could, they were so happy that I did and will get in touch with me soon to start working out how I can help out.
Iam just sooooo excited to be able to maybe help people out who were once like me...

Don't think I have been this happy for a while :-)

Originally Posted by Pat 110 (Post 670092)

Leave it to you Erin to come up with this great idea! Okay, I've got a pet one.

I have a 16 year old kitty I rescued from our local animal shelter when she was only 8 weeks old. She's always been very healthy, but due to her age she had developed some 'geriatric symptoms' as the vet calls it. One of them is she's not able to digest her food as well as she use to (I can relate to that), so her vet put her on a bland prescription diet and she was not a happy camper. Well, she didn't have any problem what so ever digesting my half a chicken sandwich she swiped off the kitchen table Monday afternoon! I think she was making a point. The vet said she can go back on her regular Science Diet can chicken for Mature Adults...smart cat!;)

Hugs,
Pat

Originally Posted by dog lover (Post 670730)

Erin,
I am so glad to see you are back and I also am guilty of leaving the forum for a while due to things seeming so negative at times. I LOVE this idea and have to admit it got me to thinking about the good things instead of dwelling on the bad. I needed that, so thank you. Ok my positive is that last night I slept for 8 hours outside of waking up once for the first time since Oct!!! It was so nice to wake up feeling like I wasn't as tired as when I went to bed. You have always been a ray of sunshine since I joined this forum and I am so thankful you're back!!! :hug:
Kendra