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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-19-2010, 05:59 AM | #1 | ||
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Hi does anyone know of a good book for a spouse and friends to read so they understand me..................sometimes they say , well I am tired too or etc., etc., they just don't get it....
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07-21-2010, 12:04 PM | #2 | ||
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Maybe this book? One of the reviewers gave it 5 stars. I don't have personal experience with it. amazon.com/Mysterious-Illness-Myasthenia-Gravis-Hazel-Smart/dp/1425924107/
Sadly I think most friends & family won't take the time to read a book. Not if they aren't used to reading non-fiction books fairly regularly. So an article might be better, sometimes they are too lazy for that even. |
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07-22-2010, 02:13 AM | #3 | |||
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Quote:
http://www.myasthenia.org/docs/MGFA_...nalSupport.pdf you can modify it for your own needs. alice |
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"Thanks for this!" says: | DesertFlower (07-22-2010), suev (07-24-2010) |
07-23-2010, 10:37 AM | #4 | ||
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07-26-2010, 06:35 PM | #5 | ||
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http://search.barnesandnoble.com/The.../9781435704046
I liked this book, The Mystery Guest MG: A Personal Plan for Dealing With a Chronic Illness I found it very informative and I had my husband read it. I also liked the Hazel Smart book mentioned. above. Another good one is: Attacking Myasthenia Gravis by Dr. Ronald E. Henderson |
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08-04-2010, 04:28 PM | #6 | |||
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Junior Member
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You, Me and Myasthenia Gravis. By: Deborah Cavel-Greant. Now in it's 3rd edition.
A good reference to keep on hand for yourself too. I've had MG for 12 years, and you would think I know everything to know about it, yet I still refer to the book. http://youmeandmg.com |
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