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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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I have been on this forum for several months and noticed one thing with 'NeuroTalk', most people have nothing in their personal profile. I was on another MG forum in the UK and the 'chairman' chastized everyone for not haveing a profile and I agree.
.nothing too personal but at least : First name, Country and town: USA, Franklin lakes NJ a short naritive of your MG story: when diagnosed what medications what reatment - IVIG, Thymas operation, etc any info on how you are being teated. I always click on the name when I see a comment, but for the most part on this forum I see nothing, just think it would be helpful for everyone... as I said the UK forum people always prvided some info. Chris |
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