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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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How long did it take for everyone to get your dx?
When your neuro/MD/etc. started questioning if it was MG then running tests? The neuro is going to do an ENG tomorrow and ran blood work last Thursday. Unfortunately they won't be able to do the memory test until Sept. 9! ![]() Today I took my son to a doctors appt. Then came home did some computer search, had lunch with sons, watched some tv with sons, talked with them, sat down again, then tried to do some laundry and light house work. The laundry and housework only lasted a full 15 minutes til my body completely crashed on me. The nausea was so bad I literally could have thrown up but didn't and vertigo so bad I almost fell down the stairs. Then I went and sat down for another hour. Did absolutely nothing but sit with my dog on the couch doing nothing at all but cried. So sick of this. I'm horrified. My voice is hoarce today and I'm having a difficult time breathing. That worries me due to having ashtma. I just want to feel better at least part of the day- is that too much to ask for? ugh! Coffeegirl |
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