Hello from a first poster.
My query seems a little silly after reading about the very serious problems many of you are having because of MG but here goes anyway:
Can hot sunny weather have a dramatic affect on MG symptoms? I've been diagnosed with MG for a couple years (probably have had it for 4-5 years) and have the typical double vision, swallowing, chewing, muscle weakness symptoms. I take three 60mg Mestinon during the day which I split in two and take every two hours plus a 180mg time release pill for overnight. All has been quite good for the past year. I have just recently been golfing three times a week then suddenly, during a continuing spell of hot, sunny weather, I had to quit right on the course due to double vision, focusing etc. The same thing happened the next time. Plus, the 30 minute drive home had to be done with one eye closed the whole time. Things started to improve by at least 50% after being inside for an hour or two. Once again, a minor problem for those that can't even get out of bed but my neuro's office voice mail was full on Friday so I thought I would check-in here. BTW, thanks for sharing your experiences....have helped this lurker to understand MG much better.

Hi--I was just wondering the same thing. I went to the lake a few times, and even though the day wasn't hot, and even though I sat in the shade the whole time, it did me in. I think that especially near a lake, there's so much reflected sunlight that sitting in the shade isn't enough.

Everyone will tell you that the heat is bad for MG. I think it's because in the heat (and the cold) your body produces extra acetylcholinesterase (the chemical that breaks down acetylcholine. In other words, heat is the opposite of Mestinon). But for me the problem seems to be not so much the heat as the sunshine.

Abby

Heat and humidity are my worst enemies. I live in Tennessee and I hibernate in the air conditioning this time of year!

I know some people with mg have problems with the cold, but I'll take cold anyday over heat and humidity


Good luck!