Make sure you're off the Mestinon for 24 hours--preferably more--before your SFEMG! It can give a false negative. Also, make sure you're nice and warm. If the room is cold, or you're chilled, they can warm you up with a heating pad.

A SFEMG doesn't involve electric shocks. That's the good news. They will put needles into your skin, but they're thin needles like used in acupuncture. Then they'll ask you to slightly tense the muscle and hold it. The whole thing takes about 45 minutes. They'll try different places. The needles stay in for a while while they collect data.

If the needle hits a nerve, it hurts, but you don't have to put up with the pain. If you tell the doctor it hurts, he can move it to a less sensitive place.

The muscle-twitching isn't new, is it? I ask because that can be a side-effect of Mestinon. Mestinon also makes my mouth water. I'm lucky that it doesn't bother my stomach--that's a common complaint.

I hope you get some answers soon, and that they're answers you can live with. Hang in there. Let us know how it goes.

Abby

Would it also give false negatives to bloodwork? They had me try it last week and then did my bloodwork the next day...

The warming thing is so interesting too. It is freezing in the EMG room. I'm not sure how I can stay warm in there. Can that effect the other EMG tests?

The twitching has been since February. The neuro says that if muscles are getting proper signals, they can do that intermittently. The Mestinon certainly makes it more pronounced!

The only thing is that I don't have any eye symptoms. My eye muscles ache a little, but no one seems to think that is of any concern. My vision has always been bad, but it is even worse at the moment. I am going to go see my regular ophthalmologist because when they did the evoked potentials I discovered that I am 20/40 and 20/70 with my contact lenses in! I am old enough for my eyes to not be changing Or if they did, they would get better, since that tends to happen to people with nearsightedness as we near 40...

Thanks for the information!

No, the Mestinon should not interfere with the bloodwork as far as I know. The bloodwork is looking for antibodies. What Mestinon does is inhibit the enzyme that breaks down acetylcholine--that's the chemical your nerves use to communicate with your muscles.

I don't quite understand what the deal is with the cold. I know that many myasthenics do better in the cold (and worse in the heat). I know that one of the diagnostic tests they use for myasthenia, for a patient with a droopy eyelid, is to put ice around the eye. A myasthenic eyelid will perk up with ice.

I don't have eye symptoms either, except for some eye strain--when I get tired, my eyes ache, and it feels like it's hard to move them. I had double vision one evening, but only one. However, my doctor can see abnormalities in the way my eyes move.

Abby

I had the SFEMG this morning...

The doctor who did the test wouldn't tell me anything, so I'm waiting. I don't understand why they only test your forearm?? I am weak in so many muscles but not anything significant there.

The only thing the doctor said was that he needed to increase the sensitivity. He told me he needed to check the numbers and he would send the doctor a report.

Side note: I feel so much better since it has gotten colder here in the Northeast!

In 2006 I was having trouble identifying people. As they got closer to me my eyes started to close. I finished work early and drove home. As I was driving my eyes kept closing and I had to hold one eye open to enable me to get home. The following day my eyes returned to normal. Over the next couple of days I had double vision for short periods ranging from 30mins to 2 or 3 hours. I went to my GP who diagnosed eye strain. My syptoms had disappeared the day before I saw the GP.

Over the next couple of weeks my eyes would close and give me double vision at times. Driving had become impossible, traffic on the opposite side of the motorway appeared to be heading straight towards me. I was unable to judge distances.
At this stage my arms and legs were becoming very weak I had to hold my head up as my neck muscles were very weak. I had trouble getting out of bed. I went back to my GP and he sent me for several XRays and blood test. All the test did not show up anything...
About 3 weeks after the double vision I started to have trouble eating and swallowing. I was sent to emergency at the local Hospital. I underwent numerous test over a 10 hour period. The end result was the doctor had decided that my "Illness" was caused by stress. He kept haraunging me and my wife to find out what was causing my stress. I was discharged from the hospital after the Doctor had decided that I needed to see a Phyciatrist.

That night I tried to lie down in bed but each time I struggled to breathe. An ambulance was called and they checked me and came to the decision that I was in no danger and should see my GP the next day which I did . He could offer no suggestions and referred me to the outpatients Dept at the Hospital. The earliest they could fit me in was in 2 weeks. For the next 2 weeks I sat in a Lazyboy armchair and leaned on an ironing board to get some sleep. If I tried to lie down I stopped breathing I lost 14kg in that time.
After my visit to outpatients the only thing they came up with was that I had type 2 Diabetes.
For the next 8 weeks I was confined to the lazy boy chair and to eating mashed baby foods. I was again rushed to the hospital with breathing problems and put on Oxygen. They kept me in for a couple of days but could not find out what was causing the problems.
After another 2 weeks at home I was sent back to the Outpatients Dept. This time the doctor called another person into the exam room. It was a Neuro. He held a pen just on my eyeline and moved it up and then he pushed my fist down a couple of times. My eyes closed and I couldn't resist when he pushed my wrist down. I heard him say that it was a classic case of something or other. He then left and the doctor turned his computer screen towards me and said ' this is what you have" All I could see was a screen filled with lots of lines. I asked if there was any info available and he told me the only info was on the internet. He gasve me several MG Organisation to contact.
He then gave me a prescription for Pyridostigmine. The scrpt said to take 2 tablets a day.
The next day I took the tablet and I started to feel great at least for a few hours. I rung my GP and he found that the doctor in the hospital had put the wrong dose on the script. I should have been 2 tabs 3 times a day. I was almost back to normal once I had the correct dosage.
The Neuro who diagnosed MG deals with most of the cases in the area I live.

Since 2006 I have not met (other than on the internet) anyone else with MG. It is very rare here.