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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-21-2010, 10:27 PM | #21 | ||
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No problem, Annie It just seems there are people on here unhappy with their doctors. I just wanted to say I am happy with my "team". That is what my opthamologist refers to everyone as.
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08-22-2010, 12:27 AM | #22 | ||
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Grand Magnate
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I wish there was real "team" doctoring, where the undiagnosed patient could go and get help. And not like at large institutions where you are shuffled all over the place. I mean where doctors actually sit in the same room and discuss cases and solve every single one of them.
The thing with doctors, at least for me, is that you don't need to talk about the good ones. It's only when you've been kicked around by the bad ones that you really need to talk about it! I have fabulous doctors too. I'm afraid that there are way too many neurologists out there who are rather controlling and not good at being open-minded or at figuring out problems that don't neatly fit into an algorithm. And when they think you have "possible" or "probable" MG, they don't do everything they can to "definitively" figure it out. Or take a good guess. Sorry, I had to get that out. We could all use the very best of doctors and doctoring in general. Annie |
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09-04-2010, 11:26 PM | #23 | ||
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I saw the vascular surgeon yesterday. He thought my arteries looked good and I had a good pulse in my feet. He told me to wear compression socks and to see if that helps.
They sold me a pair there for $42.50!! A little pricy. I went to Walgreens and they sold them from $9 to $15. I got them home and realized I bought the wrong compression. I found some online tonight for about $15 a pair. Anyone else wear these? Do you have a favorite brand? |
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09-10-2010, 12:20 AM | #24 | ||
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I wear 30-40mg knee hi's from Jobst. I get them on sale (annually for 36.50 per pair). The price you paid is about right for the knee hi's not on sale.
You can order online from 'Discount Stockings'. They are less - but by the time I pay shipping, I come out about the same by getting them at the annual Jobst sale. Try contacting a medical supply store - get quotes and ask when Jobst will have their next on site promotion. That's when you get the best price. Sue |
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