FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
![]() |
#1 | |||
|
||||
Member
|
It's been a while, just wanted to give you an update.
I'm at college, went to the er with diagnosis of bronchitis last night, then had an appointment with my new specialist at johns Hopkins. Jessica corse. Wonderul practice they have there. She's taking me off cellcept and putting me on imuran and putting me back on 60mg of pred. Due to feeling so weak lately. I had to drop chem. It was too much. Also- she said in 3 weeks if the pred didn't work that well then I would get ivig. Coooool right? Better than nothing. But hope you all are doing swell. |
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Member
|
Hi Tyson,
great that things are happening, I really hope the imuran and upped pred will work for you. Sorry you had to dr9op chem. Hope things start improving soon for you.
__________________
Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
|||
![]() |
![]() |
![]() |
#3 | ||
|
|||
Member
|
hi tyson. Hows college treating you?
|
||
![]() |
![]() |
![]() |
#4 | ||
|
|||
Member
|
Glad to hear from you Tyson!
So I get the medical stuff and hope you feel stronger soon. Don't worry about chem - - you can pick it up when you are stronger...and it cuts out both the class and the lab time which is like a two-fer for you now. (I took 8 credits of inorganic over one summer. It was terribly concentrated - but a huge gain to get it done and not having any other classes to deal with. Something to consider if you are doing really well next spring.) Sue |
||
![]() |
![]() |
![]() |
#5 | ||
|
|||
Grand Magnate
|
Tyson, I hope you are enjoying college in spite of MG.
Please make sure your doctor runs the TPMT test before switching you to Imuran! They are supposed to do that. http://www.labtestsonline.org/unders...tpmt/test.html Good luck with the change in meds. Annie |
||
![]() |
![]() |
![]() |
#6 | ||
|
|||
Member
|
Good to hear from you Tyson.
|
||
![]() |
![]() |
Reply |
|
|