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Old 08-17-2010, 02:48 AM #1
K9ja K9ja is offline
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Join Date: Apr 2010
Location: SoCal USA
Posts: 3
10 yr Member
K9ja K9ja is offline
New Member
 
Join Date: Apr 2010
Location: SoCal USA
Posts: 3
10 yr Member
Default curious "newbie"

Hi to all, I am not sure where to start. I went through alot of what everyoen has posted ... long time getting diagnosed. I was finally diagnosed back in April this year. WHEW I was prescribed 60mg of Mestinon 3 times per day. I was elated to the effect it had on my sysmptoms ... AT FIRST! I have a few of the side effects (totally acceptable for the relief it gives) Now I have alot of the sysmptoms returning anyway. My weakness was returning more rapidly and my double vision seemed to never quite go away completely. I have increased (on my own) to a pill every 4 hours. It seemed to help but within a month the symptoms are returning. Doc says we will adjust accordingly but I am curious if any of you can shed a little light on this for me. "WE" seem to have more common knowledge regarding all these little things. I am adjusting to not being as active as I was but I fear that my activity level will continue to decrease. Is this normal too? I was an avid golfer / tournamnet softball player / back packer / etc etc ... seems I can't do any of these now ... double vision has affected hand-eye coordination with some and weakness has affected all ... I have read about the time release ad the syrup ... any of you have advice on certain "cocktail" of these?? Any help would be greatly appreciated. THANKS
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