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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-24-2010, 05:54 PM | #1 | ||
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Member
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Hi everyone
I haven't posted lately but I am always reading and visit here often. I've been trying to get the word out not only about MG but also other illnesses that we suffer from. I wanted to let those of you who don't know that National Invisible Chronic Illness Awareness Week is September 13-19, 2010 Please visit www.invisibleillness.com for more information about National Invisible Chronic Illness Awareness Week. It's a positive, encouraging site so please take a moment to visit it if you can and let others know about it too. I hope your today is better than your yesterday and that your tomorrow will be better than today Blessings, Shari P.S. One of my blogs is featured on the first page so for those who are interested in reading it, click on the "Rainbow of Hope Sticky Notes Encourage People" Last edited by Shari_W; 08-24-2010 at 06:09 PM. |
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08-27-2010, 04:34 PM | #2 | ||
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Grand Magnate
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Thanks for the information, Shari. I wish our national organization, MGFA, were better at getting the word out. They do some great things but it's not quite enough. I can't get involved in this issue but it's nice that someone has the energy to do it. Kudos!
Annie |
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08-29-2010, 04:51 PM | #3 | ||
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Member
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Hi Annie,
I feel the same way about MGFA, so this is my way of trying to bring a little more awareness to MG too. Hopefully after people read my little blog they will continue reading the information about me and they will want to know what Myasthenia Gravis is. My MG is finally stable enough for me to do a little more, thank God. Just in time for school. Plus I have a little helper posting many of the notes for me...My daughter She just loves writing them and posting them wherever she can. She draws little hearts on them and everything. So cute. I totally understand that you aren't able to do these type of things. I am trying to spread MG awareness through this Invisible Illness Awareness week coming up. Thanks for taking the time to go to the site Blessings, Shari |
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