Wow. this is hard. Its AWESOME though, but im getting very tired, very easy.

I havent excersized in a while, thought i was getting used to it, yet Im not.

Everyone here is like, why dont you wanna play soccer w us. I was like, ill die if i do probably. Then have to go on explaining it even more.

Uh.


Also, every 10 minutes or so I get very dizzy and feel like im going to pass out, along with headaches, and just weak. I hope this goes away..

Congrats on moving into college. Hope things get better for you as you adjust to new surroundings and routine. At least no more babysitting!

Congratulations! Don't underestimate how tired the stress of a new situation can make you, even if it's a happy situation.

My usual explanation to casual acquaintances is "I have a neuromuscular disease that's sort of like MS." People have heard of MS. If they ask more questions, I give them the name and explain it's an autoimmune disease that attacks the communication between the nerves and the muscles.

Abby

Congrats on getting to campus!!

I admire you for doing this...it will be difficult - as you know. You will have to be vigilant on maintaining a strict schedule for sleep and rest...as well as keeping the best of eating habits. And watch out for the partying - - your body can not be abused the way many college freshman's can!

May I suggest that you clue your roommate and/or RA in on your MG, some of the danger signals, and your medical contact numbers. It never hurts to be overly cautious. (I remember when I was in college and passed out they 'assumed' drugs and figured they'd wait to call for help - - when in fact I was dangerously hypoglycemic and almost went into a coma!!)

You are going to be very, very busy - - but if you get a chance, let us know how it's going. Will be thinking about you. Wishing you good professors, interesting classes, and lots of energy!!

Sue

Hey dude Im in college too. Get used to explaining the story over and over again youre goin to meet tons of people if your college is anything like mine. Living in a dorm is actually pretty ideal for someone with MG. No cooking or cleanin. Have fun at school.

How exciting for you! Be sure that your Health Center is aware of your condition, and be sure and talk to the Disability Services Coordinator at your college - they will be able to make special accomodations for you to get to and from classes (you may be able to get "shuttle" service from your dorm to the buildings where you have classes, or maybe even a tricked-out moped or scooter), as well as working with your professors to let them know that there may be times when you are too tired to make it to class (this is ESPECIALLY important when it comes to tests and homework). If you have a car on campus, I hope you already have a handicapped sticker; if not, don't be shy about asking for one - you definitely will need it!

Fortunately, you have the Internet and you may even be able to get something set up so that if you are unable to make it to class you can still watch the lectures and/or get a video copy sent to you to watch in your dorm room. There are some classes where "being there" for the lecture is such an important part of understanding what the professor is trying to get across. With a "disability" such as MG, this equipment should be covered by the school as part of your tuition.

Don't be afraid to talk to each of your professors/TA's at the beginning of each semester so that they can work with you to get your classwork turned in, as well as making sure that you are able to make up work if you are not able to get it done due to your MG (obviously, you don't want to "take advantage" of the situation, but if they see that you are serious about your studies, they will work with you). I always tell my daughters that the professors don't know that you are having problems unless you talk to them; otherwise, they assume that everything is OK.

And you will find that other kids on campus will be understanding if you aren't able to participate in everything - I know that it is hard for you, but you will find ways to fit in, and you will also find other students who will be there to look out for you and who will see you for yourself. Your MG will just be another "part" of who you are, and most of the new friends that you make will just accept it and get on with things (and they'll really appreciate having a friend who can park close in - you may find that you are VERY popular, especially on cold and/or wet days.....).

Good luck, sweetie - this is such an exciting time in your life!

P.S. What college are you attending?

Thanks guys for all the support, it really is a great college. It will be a good experience. Its just going to take some getting used to, which is alright. But I have contacted the health department just to make sure that they know, and what they offer, the campus isnt really that big, but it gets me tired. But it also gives me my excersize which i like without having to try because all i can do is walk:/. Atleast i can do that.

I called my neuro today about these weird new symptoms ive been having, hope he calls back today.

But I go to Goucher, its in baltimore, MD.

Classes start tomorrow, joy joy.


Hope your all well