Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 08-30-2010, 04:11 PM #1
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Red face New here-hello

Hi all, I was doing some reading here. Here I am hoping for another positive test as my eyes have tested positive for MG yet the young neuro I have is still resisting. I saw another here who had a positive SFEMG and breathing difficulty yet the neuro said no. It just stuns me and disheartens me that there is so much subjective area in this disease. It's as if which way the wind is blowing on the day you are seen will affect whether you are diagnosed.

The last is my landlords have become fed up with my disabilty (or scared) and are making it difficult for me to stay here. My AC broke and rather than put a 10000BTU back in they put in a 6000BTU which means I end up with abve 80 degrees too often. The wife has an autoimmune disease and she has started to work for the business. She is the only who is handling this and she is being so irrational. I kinda get that this is about her fear that in such a short time she could be just as sick.

Gotta sign off.
Annie59
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