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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-05-2010, 10:58 AM | #1 | ||
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I never a had BP problem before MG. My initial IGIV infusions were interupted because my BP was out of control. I was referred to a nephrologist that presrcibed different meds for me before he came up with a combination that worked.
I now take 3 meds for BP that my neuro approved and have not had a problem since. That was 18 months ago. I am 67 years old. Tony |
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09-05-2010, 02:23 PM | #2 | ||
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Grand Magnate
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Any form of deconditioning of muscles can lead to higher blood pressure, which includes MG. The heart is not the only thing which can effect high blood pressure.
There is "essential" and "secondary" hypertension. It is very important that a cause for the high BP be thoroughly investigated before a blood pressure drug is thrown at you. Many times the cause can be improved or eliminated (such as a drug). And going off of a hypertension drug can actually cause a spike in BP, greater than it was before the drug. http://www.aafp.org/afp/2003/0101/p67.html http://enotes.tripod.com/hypertension2.htm http://www.nejm.org/doi/pdf/10.1056/NEJM198004033021402 Higher BP should ALWAYS be investigated. My Dad had high BP, which was not diagnosed by his doctors, due to aortic insufficiency (due to rheumatic fever) and this caused his kidneys to fail. Renal artery stenosis is one of the main causes of secondary hypertension. This can be determined by a duplex ultrasound (easy test, I've had it done). I hope they can figure this out, Debra. |
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09-06-2010, 03:23 AM | #3 | ||
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Quote:
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09-06-2010, 08:40 AM | #4 | ||
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Poetist: I read your other post and I have asymmetrical weakness too. I have found more than one citation about it and MG and my MG specialist didn't even blink an eye about it. Is there some reason you aren't you having your thymoma removed? I thought it was a better prognosis to get it out and yours is quite large. . .
Also, my neuro diagnosed me based on his assessment and my response to IVIG and then when they found the mass on my thymus that was the definitive objective test that sealed the deal. It sounds like you are diagnosed to me. I know what you mean about mestinon. It definitely made my heart rate very mellow and lower and I did stop taking it at the end of July but I had issues before mestinon and I think we need to get to the root of the issue now. . . Thanks for the info Annie : ) |
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09-07-2010, 01:48 AM | #5 | ||
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I have to get another round of MRIs in a couple of months. The doctor never officially said thymoma. He said it is tissue that 5.7 cm on my enlarged thymus; it was originally only described as a remnant. I assume tissue means tumor.
In the process of discovering I had tissue growing from a remnant, to 2.5, to 5.7 cm, my father was dying in the hospital. The last MRI showed no growth. Anyway, I am using this time to sign up for disability insurance, so if or when I have surgery I won't be hit financially. I do appreciate all of the great advice on this website, and for my next doctor's visit, I will come armed with information. Personally, when the doctor changed his mind from surgery to no surgery, I was personally relieved. However, I really didn't know why he changed his mind other than the MRI showing no malignancy. After I see everyone had surgery and their tissue was less than mine, it got me back to thinking. Am I getting the best care? I will request another neuromuscular specialist, if it is possible, because I do not think the doctor has enough experience in the disorder. |
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09-07-2010, 01:05 PM | #6 | ||
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I have never heard of an MRI being able to determine if a mass was malignant or not. I thought only a pathologist could determine from a tissue sample (or a histologist in the case of blood).
Pls get your dr to explain how he has made his determination - - it may help you feel more comfortable about getting a new doc! Sue |
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09-09-2010, 03:35 AM | #7 | ||
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Sue, I was told the determination was made by viewing the MRI with contrast. I looked it up on the web, and doctors determine how the tissue appears under contrast.
Though, someone on this site was told their tissue was benign but after the biopsy, it was deemed malignant. So, I'm not really confident, but I have read that most of the tissue on a thymus is benign. Once I obtain some insurance, I will schedule an appointment with the same doctor, because I need him to order the next round of MRIs. After that, I will most likely request another specialist. |
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