It's been about 4 months since I stopped in here. I had a neuro visit back in May and they diagnoses me with Benign Twitches. I went home and began to think I had ALS. Well, I can rest assured that I know now that is not how ALS works. however I couldn't let the idea of why I twitch every day go. About 2 months ago I let go of my fear and I began searching again. That brought me back here. Here is my story.

I have a family history of autoimmune diseases. My mother has fibromayalgia, and my grandfather had MG. A little over one year ago I was diagnosed with being hypothyroid (was not given a causes, the Doc just said....sometimes this happens). I was sent on my merry way with levothyroxine to boost my thyroid. Then on good Friday of this year the whole left side of my face drooped down and became almost completly paralyzed. I was diagnosed with Bell's Palsy, no tests, just told that is what I have. I took prednisone for 3 weeks, and that was that. As soon as I stopped taking the prednisone for 1 week I began having tingling in my feet which would come and go, then the twitching started. I randomly twitch all over my body all day. 95% of the time I only notice it when sitting down and relaxing. They are very random, somedays are better than others. The worst area is in the same area where I had the Bell's Palsy. Now this never came from a doctor, but I have found a condition called peripheral nerve hyperexcitablility that matches my symptoms to a Tee. it's primary symptom is random twitching....with occasional tingling and cramps depending on the severity. I do get occasional cramps. The worst is in my lower back, and more rarely have some in my feet (got one yesterday). I have also had the tingling. According to an article in the oxford journal this is most likely autoimmune. And also in the article says that many people who experience these symptoms also have other autoimmune diseases like thyroid, and the most common one is MG. This is not to say that PHN is a symptom of MG, but rather that those who have this are more likely to develop MG.

The only other signs I think I could have are that I do have very very slight double visions (this is diagnosed by an eye doctor and he was unconcerned). I have enough strength in my eyes that I don't notice this 99% of the time. I have also experienced periods where my neck hasn't gotten so weak that I had trouble moving it, but if I yawn or frown the muscles violently tremor.

So here is where I am at. I have not had ANY testing for the causes of my thyroid issues, they never tested for the cause of the Bell's Palsy, and other than a quick nero exam back in May (which was only a clinical exam...reflexes and strength tests...no blood work or diagnostic tests) that has been the extent of their diagnosing. With my family history and all of these things I feel like my conitual twitching (for the last 4.5 months) has to be autoimmune related. I know this is long and I appreciate anyone who took the time to read. What should I do. The symptoms are annoying right now, but manageable. they don't stop me from doing anything. I know first hand what MG can do to a person. I loved my grandfather with all of my heart. I sitll wear his wedding ring to this day. He gave it to me before I got married. so I understand what you all go through. also undertand i have let go of the fear that I was experiencing, and now just want some answers. I would also like my wife to realize this is not "all in my head."