[athena]

Can anyone describe the feeling of hip girdle weakness? I have been having proximal muscle weakness for over a year now. MG has been ruled out; now we're testing for LEMS. Recently mild exercise causes me to lose stability in my hips. For the past year or so frequently I'm off kilter when walking (can't walk a straight line). Recently when I'm standing while a bit tired my hips won't stay still. It feels like my pelvis is tilting back and forth and, try as I might, I can't get it to stay still. I end up leaning on something for support. Does that match anyone else's experience? I'm having trouble explaining it to people.

Thanks!