[TRESA]

Sorry I have been absent for so long-here goes the story: I live in a small town in Kansas and was being seen by a neuro who is highly intelligent and very much thinks he is the top dog in this medical arena. When my new internist last year arrived from Texas/SW Medical school-she believed I had MS and got a therapy team to assess all my body weaknesses. Then she sent me to our Kansas City Medical center to a highly regarded MS specialist. My neuro found out and on my next appt with the MS specialist I was told in no uncertain terms to return home and not return without my doctor's orders!!! Dumbfounded I walked out of her office. All I could think was-my internist DID send me??? I was so bewildered. Well, next day I found out my new internist had been fired! I can only assume the "Top Dog" disapproved of her going behind his back or whatever. Small minded "Dr. god" dwelling in a tight *** box! Well, over the year, I developed ptsosis, dbl vertical blurred vision, attacks of eye blindness, gasping breath attacks etc etc. So recently I was sent to Urologist cuz during last flare-up I stopped urinating for 3 days so I get to have the exam. ome to find out I have totally lost all sensation of feeling down there and only bladder empty 1/2. So, neuro who had finally started me on Mestinon-which has been a life saving drug for me and I have a life again-has now been shot down by ??? and called me into his office to tell me he is done with me and is sending me on to Myasthenia specialist at Unoversity-which Im very excited about as his bio is incredible. So now I have to stop all meds-and it is scaring me to death! Heart, lungs, kidneys, seizures etc. "They" want to see me me at baseline! UGH. The trip is 31/2 hrs away-appt at 9AM and another at 3PM and then around 5PM I get to return home with another 3 1/2 hr drive. I WILL NOT SURVIVE!! haha. This better be worth it-that;s all I got to say about all this craziness.