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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-21-2010, 05:29 PM | #21 | ||
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Junior Member
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The Imuran dosage is dependent on your weight - I think the range is 2.2mg to 3 mg of Imuran per kilogram of weight. So, divide your weight in pounds by 2.2 to convert it to kilograms. Then, multiply that by 3 to get the max dosage of Imuran that's right for you. Do you know the strength / dosage level of your Imuran tablets? that is, how many miligrams each tablet is? I have 50mg tablets, but they may come in other dosage levels.
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10-24-2010, 01:35 AM | #22 | ||
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Abby, what walker is that? I'd love to get one too, tho I'm not sure if it's good for me. Lol... Is it ok to use a walker if I have foot drop and atrophy on one leg n weak four limbs? I have a wheelchair but it causes my legs to swell up due to poor circulation. Am also afraid it'll make the atrophy worse. Or is a scooter better??? Lol..... I'm spoilt for choices!
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10-24-2010, 07:21 AM | #23 | ||
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Senior Member
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Quote:
This is the one I bought: http://www.amazon.com/Medline-Deluxe...7922614&sr=8-1 I have nothing to compare it to, so I don't know if it's good quality (though i was pleased with the price!). I don't use it very much, because I don't go out much. I had been using canes, but the walker is a lot easier on my arms, and it has the helpful seat. I hope you can ask your doctor whether it would be good for you! My doctors haven't been helpful in this regard (I'm going to ask to see an occupational therapist when I see my neuro tomorrow). If there's no medical reason you can't use a particular device, I'd choose the one that lets you get out the most! Abby |
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10-24-2010, 10:10 AM | #24 | ||
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Junior Member
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Hi all, after reading your posts, I'm more inclined to give in to my walking difficulties...tho I'm not immobil by a long shot, my leg weakness impedes long walking & my friend wants me to use a scooter (hate it tho)...my barn is about 45yds & I have trouble after coming back with breathing & just making my legs work....I realize I'm fortunate to be very functional in & around the house & grounds, but I wear out so quickly even when I lean on that shopping cart....I just hate to give in to the motor carts but it's becoming necessary cuz I'm getting weaker...to see me, one would not know there is a problem....also need to lose weight, but can't exercise..(?)..(I do use wheelchair in airports, definitely can't walk those distances)....
My Neuro just did an SFEMG, from the talk I think it's positive, but get the official word Nov 2nd....here is a scooter that is lightweight & easy to carry in the car, seems like a good alternative for some of us more fortunate to be able to walk short distances Hope you are all doing ok with this misfortune....Dottie... http://www.travelscoot.com/home.htm |
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10-24-2010, 03:06 PM | #25 | ||
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Senior Member
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Wow, Dottie, thanks! I never saw a scooter like that before. It's good to know they're out there.
I hesitate to get a wheelchair and/or scooter because I know I should exercise as much as I can. But I think it makes sense to have all the options. On a "good" day, I can still use a walker. On a worse day, I could use the scooter. Using a scooter, after all, is not less exercise than staying home! I could save the scooter for the times the alternative is to not go out at all. That makes sense to me. Well, I am really hoping to collapse dramatically on my neurologist's floor tomorrow when I see him. So far he's only seen me during "good" periods. Abby |
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10-24-2010, 06:53 PM | #26 | ||
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Wow thanks Abby and Dottie!! Those r very useful info. Would love to try it, though I wish the scooter has reverse gear. For me to put my legs down n do it manually, I I'd hav to use a cane as my "oar" to replace my left leg. Lol....
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10-26-2010, 05:05 AM | #27 | ||
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I have to use a wheel chair that is pushed by my husband when I am outside the house. I just can't do walking outside the house with all the additional stimulation that it brings to the senses. I can't use an electric wheel chait as I can't cope with having to hold the gear stick to drive the thing. I just dont have the strength.
In the house I limit my walking - we have a small house. When I get very bad I will use crutches, sticks or a frame. I try not to use them as you can't carry anything whilst using them. I just have to pace myself during the day. So I may have an hour where I do a few bits that involve movement and then I will rest for an hour or so to regain my strength. If I tried to go full tilt all the time I just end up collapsing and spending 18 hours in bed for weeks until I recover. The other problem I have is I get a lot of hip pain and back pain when moving around. Anything more than walking around the house will have me in agony. Using a wheel chair avoids the pain. I just view using these things as aids to get the most out of life - but it took me a while to reach that viewpoint. Love Rach |
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