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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-21-2010, 07:59 AM | #1 | ||
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Thanks everyone. The waiting can get maddening at times. Wondering if the right choice has been made...
I am the first MG patient to do this at the center where I'm going. It's been done a few dozen times at Johns Hopkins with MG people, with positive results overall. I guess I'll be posting then! Next (and last) appt is in around 2 weeks when I will get a MUGA scan of my heart, to make sure it's strong enough to tolerate the treatment and to get a baseline of function, since the chemo can affect the heart. If that is OK (and we expect it to be) all systems will be GO. Catcha later! 4-eyes |
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