[Annie59]

Good grief......what a morning!! My breathing and general muscle weakness is still worse tho I am seriously resting 24-7. For reason I am not sure of it tanked worse this morn. I had to get up and take mestinon early cause I could lay down with breathing like that.

I put bit of dairy in tummy and took a small dose of mestinon which is normal for me. I became sleepy when it had kicked in and other meds I take took care of the other pain issue. I headed for bed again. Ended up staying up as the breathing worsened. I ate a meal and had a larger dose of mestinon after. I laid back down grateful I could tho I added extra height to my stack of pillows to help breathing. About 30mn in my bowels started to cramp. Long story short I ended up in one of the worse reactions I have ever had to my mestinon! It was as if I had taken 4 times the amount I took or more!

First the bowels went heading to the bathroom for the diareah and there my tummy started in coming close to vomiting. Also all the area around my eyes began to spasm fast and constantly. When I finally was able to move to the couch I realized my diaphragm area was doing a similar thing. It was this mass of jiggle as if a bowl of jello on a table that had been bumped hard.

This is truly weird. I took more than this amount midweek when I had been on the phone so much my breathing was going down. The only big change is that last nite got really cold in here and my body does respond very strongly to that. I use cold packs from the freezer to help my muscles at times. (see Katie Jasmons video on Youtube or the other site it is something I totally get and it works for me). One of the things that seems to throw my docs is that the first year I was sick I got alot better during the winter of the upper midwest. At nite I ran little heat as I learned how much it helped my over all during the day. But I also had to cut back on my mestinon some as the weeks passed as my body literally didnt need as much and did act like it was too much for me. But never did I have this strong of a reaction. I have all of these reactions in a smaller way. Oh and it also affected my speech today.

Do any of you have the winter/ cold thing? I have having aanother day of much rest so hopefully I can call my mom in a couple days.

Annie59