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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-06-2010, 11:45 AM | #11 | ||
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Glad your surgery is over and hope you are on track to a complete and full recovery. You no doubt feel pretty awful right now, but here's wishing each day a bit better until you feel better than before!!
Sue |
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11-06-2010, 09:24 PM | #12 | ||
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I dont know if I will get to this point but wanted to be sure to send you a very gentle hug. I hope you have someone to help you get thru this time.
Annie59 |
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11-14-2010, 10:41 AM | #13 | ||
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Thanks for the support you guys. . .I am through surgery and the intial aftermath (the worst part) and home now and onto recovery. Luckily, I have good support so that helps a lot : )
I will write more about the experience when I am up to it. . .debra |
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11-14-2010, 11:03 AM | #14 | ||
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It's been less than 2 weeks since your surgery and you are already past the worst part! That's terrific!!
Now for the 'I'm begining to feel a bit more like me' phase!! Hang in there - and plan on a big turkey celebration..as I'll bet by then, you'll be well on your way to feeling so very much better. |
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11-14-2010, 11:52 AM | #15 | ||
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Debra,
Glad to hear your already starting to feel better! A good support system goes a very long way. Enjoying your holiday will be much easier now that the initial stress of your surgery has passed. Rachel
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You never know how STRONG you are, until being STRONG is the only choice you have!
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11-14-2010, 06:34 PM | #16 | ||
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Great news that you are doing well. May that continue and may each day just get better and better!
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11-23-2010, 04:56 PM | #17 | ||
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Wow, the recovery is quite a difficult battle from the full sternotomy it turns out. The pain has been very intense. It's like a hot poker is stuck in my chest mixed with the chest spreader pulling sensation going on...not nice.
I heard that it's pretty difficult to control the pain with this type of surgery since you cannot immobilize the area. They have changed my pain meds a couple of times now. It's a bit better now but the late afternoon/early evening time has been the most difficult. And between doses, the pain gets too high. Since yesterday, it is finally better controlled because I started yet a different new med. The thymus pathology came back as just large thymus so far. It was visualized on the MRI and CT as 1.5 x 3 cm and 2 months later it was 6x10 cm when it was removed!!! My neuro is hoping they haven't tossed it out and will spend more time resectioning it again. He said it's like finding a needle in a haystack, especially when it's that large. Also, there is no indication of a tumor thankfully. Thanks for the recovery well wishes and hugs : ) debra |
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11-25-2010, 04:50 PM | #18 | |||
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Hi Debra,
so glad you're through the surgery. Yep I can understand the pain, I lived on pain killers for quite a while afterwards, my Dr said to take panadol every four hours, which I did. take care and rest lots Kate
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