Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 11-06-2010, 11:45 AM #11
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
Default

Glad your surgery is over and hope you are on track to a complete and full recovery. You no doubt feel pretty awful right now, but here's wishing each day a bit better until you feel better than before!!

Sue
suev is offline   Reply With QuoteReply With Quote

advertisement
Old 11-06-2010, 09:24 PM #12
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Default

I dont know if I will get to this point but wanted to be sure to send you a very gentle hug. I hope you have someone to help you get thru this time.
Annie59


Quote:
Originally Posted by suev View Post
Glad your surgery is over and hope you are on track to a complete and full recovery. You no doubt feel pretty awful right now, but here's wishing each day a bit better until you feel better than before!!

Sue
Annie59 is offline   Reply With QuoteReply With Quote
Old 11-14-2010, 10:41 AM #13
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
Default

Thanks for the support you guys. . .I am through surgery and the intial aftermath (the worst part) and home now and onto recovery. Luckily, I have good support so that helps a lot : )

I will write more about the experience when I am up to it. . .debra
art chick is offline   Reply With QuoteReply With Quote
Old 11-14-2010, 11:03 AM #14
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
Default

It's been less than 2 weeks since your surgery and you are already past the worst part! That's terrific!!

Now for the 'I'm begining to feel a bit more like me' phase!! Hang in there - and plan on a big turkey celebration..as I'll bet by then, you'll be well on your way to feeling so very much better.
suev is offline   Reply With QuoteReply With Quote
Old 11-14-2010, 11:52 AM #15
craftyRCC craftyRCC is offline
Member
 
Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
craftyRCC craftyRCC is offline
Member
 
Join Date: Sep 2010
Location: Central NJ, USA
Posts: 123
10 yr Member
Default

Debra,

Glad to hear your already starting to feel better! A good support system goes a very long way. Enjoying your holiday will be much easier now that the initial stress of your surgery has passed.

Rachel
__________________
You never know how STRONG you are, until being STRONG is the only choice you have!
craftyRCC is offline   Reply With QuoteReply With Quote
Old 11-14-2010, 06:34 PM #16
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
lolligrump lolligrump is offline
Junior Member
 
Join Date: Sep 2010
Posts: 13
10 yr Member
Default

Great news that you are doing well. May that continue and may each day just get better and better!
lolligrump is offline   Reply With QuoteReply With Quote
Old 11-23-2010, 04:56 PM #17
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
art chick art chick is offline
Member
 
Join Date: Apr 2010
Posts: 132
10 yr Member
Default

Wow, the recovery is quite a difficult battle from the full sternotomy it turns out. The pain has been very intense. It's like a hot poker is stuck in my chest mixed with the chest spreader pulling sensation going on...not nice.

I heard that it's pretty difficult to control the pain with this type of surgery since you cannot immobilize the area. They have changed my pain meds a couple of times now. It's a bit better now but the late afternoon/early evening time has been the most difficult. And between doses, the pain gets too high. Since yesterday, it is finally better controlled because I started yet a different new med.

The thymus pathology came back as just large thymus so far. It was visualized on the MRI and CT as 1.5 x 3 cm and 2 months later it was 6x10 cm when it was removed!!! My neuro is hoping they haven't tossed it out and will spend more time resectioning it again. He said it's like finding a needle in a haystack, especially when it's that large. Also, there is no indication of a tumor thankfully.

Thanks for the recovery well wishes and hugs : )

debra
art chick is offline   Reply With QuoteReply With Quote
Old 11-25-2010, 04:50 PM #18
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

Hi Debra,

so glad you're through the surgery.

Yep I can understand the pain, I lived on pain killers for quite a while afterwards, my Dr said to take panadol every four hours, which I did.

take care and rest lots
Kate
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New (almost) Poster/Question PN and new pain inspirations Peripheral Neuropathy 12 08-02-2010 11:29 AM
Question about new pain med? abrown176 Medications & Treatments 10 06-26-2010 09:35 PM
Question about arm pain HopeLivesHere Thoracic Outlet Syndrome 9 01-07-2010 11:45 PM
pain relief question? help please! peekaboo Fibromyalgia and Chronic Fatigue 5 05-19-2009 03:09 PM
Have a question about pain in another way. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 12-06-2007 07:44 PM


All times are GMT -5. The time now is 12:48 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.