[Annie59]

Are there any treatments you have had for MG that have helped your brain fog/mush? Mine is scary bad. I am only 59. My daughter and I talked about my car last nite which I cant drive right now due to mostly vision( cataract and MG double/blurring). But my hope is that you will tell me that once I get on the other side of this diagnosis (biopsy soon) that some of the treatments also help the brain fog.

Annie59

[DesertFlower]

Sorry your are having brain fog.

Minimizing stress in my life and taking Methyl B-12 vitamins seems to help the most.

I am 38 and I get brain fog often, mostly when I get stressed. I don't know of any medical treatment, but I've heard things like yoga and meditation help. Sometimes I can't remember what I am doing and have to sit down and relax...only once I relax can I remember. My memory troubles seem to be more related to stress than to MG.

I hope this helps.

[Annie59]

Oh I guess I wasnt clear which is part of the brain mush/fog. I have had testing and the woman said I had noticealble slowed thinking. To me it feels like a big memeory change as I have alwys been so quick.

What I meant was for anyone who has cognitive changes as part of disease does it get better after say IVIG or thrymectomy. I do pretty good with stress per se tho yes it is high now. I do hypnosis regularly and acupuncture daily. Also my sleep is quite good.

I have had thinking declines that came along the same time as flares of other symptoms like I had in March. So while I agree stress can cause some I think some of this is the disease.

Annie59

[Poetist]

When I increased my Mestinon, I had brain fog for about a weak which essentially was followed by a paralysis for about five or so hours. Afterwards, I regain my ability to use my limbs, but both sides of my body were really weak, when only one side use to be.

I was sent to ER and told it was an adverse reaction to Mestinon.

Eventually, I regain my strength on my left side and was placed back on them, but to be on lower doses until my body can accept the medication. Now, I back to taking a higher dosage of Mestinon, and I no longer have the brain fog.

[AnnieB3]

Annie, Have you ever had a sleep study done? Some people with sleep apnea have "brain fog" due to not good enough sleep. Also, your pulmonologist could order an overnight oximetery first to see what your oxygen saturation is while sleeping.

BEG someone to test your vitamin B12 level. You should not automatically assume that all new symptoms are related to MG. A B12 deficiency is super common. If the lab normal is 200 - 800, for example, and your number is 250, that is very low and you should supplement with sublingual (under the tongue) methylcobalamin (B12).

Does Alzheimer's disease run in your family? Any time you have cognitive dysfunction, you have to think of that.

Whatever is going on, you'll have to be fully evaluated by DOCTORS. I know you don't like them but there are very good ones out there. Maybe if you say where you live (not specifically but generally), I can direct you towards some good ones, since I live in MN.

I know people who are 80 and older and don't have brain fog. It's not always about "getting older." A good doc will do all sorts of tests, including thyroid, comprehensive metabolic panel, etc. When was your last cardiac workup? Cardiac problems can lead to feeling "out of it" too.

I hope you can figure out what is going on. BTW, has anyone worked you up for lupus? Do you have any signs of it? Some people with Sjogrens get lupus. Lupus can "attack" any body system. Just a thought.

Annie