Rachel,

It sounds like we are both starting out low on the Mestinon and ramping up. I have been able to take 30 mg twice a day now without any problems. Today I'm going to take 30 mg three times. I think I'm sort of afraid to take the higher dose because I am seronegative. Even though I am responding well to the Mestinon it's hard for me to believe at times that this is what I really have. If you ever want to talk about how you are doing on the Mestinon just message me. Thanks!

Annie,

I had no idea that Neurontin could cause MG! I have had my B12 checked and it was normal. The doctors think my neuropathy is left over from an attack of Myelitis that I had six years ago.

The Neurontin/MG theory really could explain how I developed MG. The neuropathy came first, then the MG symptoms. I've only had the weakness and other typical MG symptoms for about two years.

I am suppose to be taking 60 mg three times a day, but I'm slowly ramping up the dose. I have been poked and prodded and tested for everything. I really do feel like MG is the correct diagnosis. Especially because I have responded so well to the Mestinon. My eye doctor really was the first doctor to diagnose me with it based on my ptosis.

Thanks for your info. I have given me a lot to think about.

Shalynn

PS...I'm having to learn my limitations all over again because the Mestinon makes me feel like I can do more, but when it wears off I can really feel it.