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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-15-2010, 02:50 PM | #11 | ||
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Rachel,
It sounds like we are both starting out low on the Mestinon and ramping up. I have been able to take 30 mg twice a day now without any problems. Today I'm going to take 30 mg three times. I think I'm sort of afraid to take the higher dose because I am seronegative. Even though I am responding well to the Mestinon it's hard for me to believe at times that this is what I really have. If you ever want to talk about how you are doing on the Mestinon just message me. Thanks! |
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11-15-2010, 02:57 PM | #12 | ||
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Annie,
I had no idea that Neurontin could cause MG! I have had my B12 checked and it was normal. The doctors think my neuropathy is left over from an attack of Myelitis that I had six years ago. The Neurontin/MG theory really could explain how I developed MG. The neuropathy came first, then the MG symptoms. I've only had the weakness and other typical MG symptoms for about two years. I am suppose to be taking 60 mg three times a day, but I'm slowly ramping up the dose. I have been poked and prodded and tested for everything. I really do feel like MG is the correct diagnosis. Especially because I have responded so well to the Mestinon. My eye doctor really was the first doctor to diagnose me with it based on my ptosis. Thanks for your info. I have given me a lot to think about. Shalynn PS...I'm having to learn my limitations all over again because the Mestinon makes me feel like I can do more, but when it wears off I can really feel it. |
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