[MomYaYa]

So my question is, it seems that we have vision struggles, but does anyone have HEARING troubles?? Like my eyes struggle with double vision but my prescription stays the same for my vision... in the same way, my ears struggle to HEAR but all tests say I CAN! Is it just me or is this an MG thing?

Last night we had my husbands company party. It was a long evening and because it was long my legs and neck fatigued (even though my wonderful husband did all the food fetching for me lol) So as we got up to leave, I had to use my husbands arm for balance and strength. Even though I did that, of course, my legs had a mind of their own and I waddled and swayed, and had to lift and clomp my feet. I just KNOW that everyone thought I was DRUNK!!!!! OMG I was soooooo embarrassed!!!!! LOLOL!!!!!!

[AnnieB3]

Kim, Have they ever tested you for celiac disease? Yes, there are muscles in your ears which can be affected by MG. Celiac disease is common and comes with a slew of other symptoms, like hearing problems.

Don't be embarrassed. Well, that's easier said. I absolutely hate when my eyelids and entire face droop while I'm running errands, which they do every single time. That looking like you're drunk thing is common in MG. I'm pretty sure I've bumped into every wall in my apartment. It makes me feel stupid every time, even though I know it's my muscles.

Whether you explain it to your friends/family or not is up to you. It might help though.

Don't attribute every new symptom to MG though. It's always best to bring up anything new to your primary doctor, not your neuro! Neuros deal with their specialities and your primary doc can assess things in a broader way.

Keep asking questions. There is a lot to learn, think about and adjust to! You do know that drinking can make MG much worse, right? If I even have a sip of alcohol, I can wake up unable to breathe.

Annie

[MomYaYa]

Oh yes, I never ever drink, but no I didn't know that alcohol affected MG.

Yes I was tested for Celiac a long time ago when I started having trouble with... well.... ultimately after tests was found to have IBS which I can control with diet for the most part.

Most family, and some friends know, but I hate the way they treat me like I'm about ready to break.

And boy oh boy do I know what you mean about the walls. lol! I have horrible balance and am always tipping over. Sometimes people think I do it on purpose, but oh well.

Originally Posted by AnnieB3

Kim, Have they ever tested you for celiac disease? Yes, there are muscles in your ears which can be affected by MG. Celiac disease is common and comes with a slew of other symptoms, like hearing problems.

Don't be embarrassed. Well, that's easier said. I absolutely hate when my eyelids and entire face droop while I'm running errands, which they do every single time. That looking like you're drunk thing is common in MG. I'm pretty sure I've bumped into every wall in my apartment. It makes me feel stupid every time, even though I know it's my muscles.

Whether you explain it to your friends/family or not is up to you. It might help though.

Don't attribute every new symptom to MG though. It's always best to bring up anything new to your primary doctor, not your neuro! Neuros deal with their specialities and your primary doc can assess things in a broader way.

Keep asking questions. There is a lot to learn, think about and adjust to! You do know that drinking can make MG much worse, right? If I even have a sip of alcohol, I can wake up unable to breathe.

Annie

[brandonc]

I feel that once I start feeling the fatigue set in i concentrate really hard on basic things like moving or keeping my head up or my eyes open so it doesnt really leave much room in my head for other things like paying attention to what people are saying and it makes me feel like i cant hear sometimes but i think its that youre kinda preoccupied