Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 11-11-2010, 01:15 AM #8
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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Thank you all so much. You cant imagine how this has helped me get thru this deeply hard day. Having this much physical pain with it made it worse. I think I mentioned that with 2 docs doing so many of the various pushing and pulling things on my head to prove neck strength I have this horrible headache.

I started to write earlier as it was all coming up again. When at the end I tried to thank you all I was afraid with the rest of what I said it sounded like I might be saying goodbye in the permanent way. I didnt post it. The good piece is that something turned around and I started to write an email to y daughter and stuff came that I hadnt thought of that afffected the doc visit and what happened. I will share some of that with you later. It made me feel better. Putting it to words helped.

I am really beat even with the big nap I had. We had the last day of sun that could be used for shorts/some tanning today. I wished I was well enough to go out into it. WE acutally set a record for Iowa of 68 degrees! Thank heaven I told my landlord not to put on the AC cover for winter as I would have gotten way too hot.

I am so grateful I have found friends here. Kind people who know what this is like and share. Mates in this journey.

Annie59
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