Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-15-2010, 10:15 AM #1
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
Red face My Story. Is your similar

About 3 years ago, I began experiencing severe pain in my legs. Lots of tests done. Negative. Over the last several years, I fell and one time dislocated my arm. No reason, lost balance and 3 times did not know I was falling until I hit the ground. Very exhausted and fatigued all the time. I am someone who never stops. Keep pushing and pushing. Not a "no" person when asked. Due to an unusual EKG last year, saw the cardiologist, lung doctor due to shortness of breath. No real problem. Ended up at a neuro's office due to other specialist telling me I needed to go back to work and learn to live with pains that come with my age (57). Was recommended by other specialist just to calm my thoughts of being afraid of ALS. Long story short. I was diagnosed with MG 2 months ago. Taking generic Mestinon 30 mg 2 times a day. I rest alot. Mestinon started relieving my legs soon after taking for the first time in years. The doctor was more concerned with weakness, but it felt so good to be relieved. People and family do not really understand. They look at the outside and as usual think I am making most of this up that they are just as tired. I feel so alone at times. I am beginning to get a little depressed because I can't explain it and now I am wondering if I am sick. My blood work x2 and EMG came back as MG. My weakness is I give out if I lift my arms up for a few minutes. I lost my voice last October 2009 (hoarse) and have not gotten it back. ENT said allergies and I needed speech. Neuro said not. I trust him. He is so good. I used to walk but the pain won't let me now when I start using my legs. At rest, they feel better. I have been reading this forum for a while now and it is a wonderful thing. This is my first post. Is MG different for everyone. Sorry for being long winded. Easier to type than talk. busybusy
busybusy is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone have similar symptoms? itsmekath Parkinson's Disease 2 09-02-2010 09:47 AM
Has anyone had a similar experience? susanjpullen Peripheral Neuropathy 4 11-23-2008 04:13 PM
Social Security News: Powerful TV Story On Backlogs (VIDEO Story) Stitcher Parkinson's Disease 1 07-14-2008 10:55 AM
PN but similar to RSD and treatment? daniella Reflex Sympathetic Dystrophy (RSD and CRPS) 14 07-30-2007 04:31 PM


All times are GMT -5. The time now is 01:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.