I wanted to start this separate thread about the breathing component. I need help finding words phrases to explain, to respond to the docs around what it feels like with my breathing. All my life I have been a pretty good word person. In when I went back school there was a manditory reading class that I (thank heaven) tested out of because of my high vocabulary tho I do read slower than I wish. But words are so so hard to locate these days with the level of Brain Fog I have. I hope some of you can help but telling me how you respond to this question. The young student that was in the room at the neuro appointment was really probing me on how it felt in my chest. I pretty sure what I said, what I managed to get out wasnt good at all.

Sometimes after high activity it can actually feel like walls. Like muscles in my chest wont move. But generally I dont feel much like when I try to talk or like trying to sing my voice just stops coming out. One of the most dramatic things to me is when I did the mestinon test with my pulmo. I asked if I could do a round of pulmonary func tests before and after a dose of mestinon. I could have cried at the moment I felt my lower lungs-diaphragm area 'work.' The main thing I dont feel it anything working. Other than that I do feel myself trying to breath. I feel that it is more work, harder to get air in. My pulmo asks me if I wake at nite which no I dont really on a regular basis. But I stay up till I can breath well enough to go to bed. Even in bed now I am almost sitting up with the stack of quilts and pillows. The worse nites I pull my knees up and lean them again pillows on the side cause that helps ease my breathing alittle. Having them flat in bed does something that is not helpfull.

See all this is too much to go thru so I need more concise and I have lost that ability. I do and have tried to write it down.

Annie59 thank you all