[LindaR]

Hi

Does anyone else have a flucutating and unstable blood pressure and if so do you know if this is related to MG? A doctor told me once that there are muscles that bump your blood around your body and they could be affected by Myasthenia - does that sound right.

I take blood pressure tablets to keep my blood pressure down but to give you some idea in one day it can go from 140/90 to 110/65. This is when I am unstressed and doing not a lot - none of the doctors seem concerned but dont understand why.

Any thoughts on whether I should worry and pursue it further or just say its another thing unique about me

Have a good day

Linda

[Joanmarie63]

Hello Linda, My blood pressure is low, it goes from 115/75 to 60/30 so sadly I can't help you with high blood pressure. MG effects us all in slightly different ways. Check other posts here as I think I recall others with high pressure.

[erinhermes]

YES! YES! YES! I know what you mean! MY USUAL p/b is low, but it DOES fluctuate between waaaaay low 80/40and waaaaay high 160/90 -I blame that on the pred, and so does my neuro........when I feel very, very anxious I take some xanax and that seems to do the trick.........

Are you on any MG related meds? That MAY contribute to your high b/p.

Can't wait to hear from you!
Erin

[TracyAZ]

Oh wow, my blood pressure is high, and has been since i started prednisone. I'am on blood pressure meds also. 150/107

[Tbarney]

I have developed high BP since having MG. I started Mestinon last Aug. I do not take Prednisone. This spring my BP got real high. It was 160 -180/90-100. Kind of scary high. My Dr. did not seem to think it was MG related. My thought was why not, everything else seems to be. Now I take BP medicine and it is under control. Since this I have started CellCept.

[redtail]

I've always had low blood pressure, and this hasn't changed since acquiring MG nearly 7 years ago. I take pred and cellcept.
When having IVIG once the pb machine kept alarming because my bp was below its parrametres, so I guess I could do with a little higher blood pressure

[Jones3251]

Drinking too much water and it depends on what you call too much as 3 quarts a day is good for your body, is very rarely a cause of high blood pressure. Hypertension is usually caused for excess weight, high salt intake, stress or some problem in the with blood flow in the body. High blood pressure is the pressure exerted against the artery walls. Now if you are not in taking too much salt some drugs will hold salt in the body like Imuran and it will come out in your urine. If you're over weight well I think you know the problem. You should reduce your salt intake to no more than 1500 mg per day and use herbs and spices to add taste.

Now that being said there is the white coat syndrome and you have to lean to relax but there is also a side effect to this white coat syndrome in that doctors and nurses are lazy. They don't care if your blood pressure is high or not so this is what you need to do.

As a Myasthenia patient you never take you blood pressure when you are lying down or in a laid back position. There is a condition in which blood pressure will change depending if you are laying down.

So you walk into the doctor’s office do not have him/her take your blood pressure until you have sat for 10 mins, sit up straight. NO CLOTHING BETWEEN YOU AND THE BLOOD PRESSURE CUFF. Take the reading at least twice with about 2 - 3 mins in between and the blood pressure machine should not be pumped up any higher than 30 above your pressure. So if you have 160/80 then they should only pump it up to 190. If you are caused any pain your blood pressure will increase. When I am passing kidney stones I have seen my pressure up to 220/xx.

James

[Annie59]

What I think is going on for me is that the mestinon is affecting my BP. I think I am pretty out of shape at this poiint and I think that affects some of what goes on too. I know that in the morning some days my chest aches. I know that pushing water and getting mestinon in me can make that stop. Given the frustration at the university with my case I havent brought this up yet except breifly with my pulmo. Honesly I am afraid it would get used to take my mestinon away.

I am putting up a link here that may be of interest. I have read alot on autonomic dysfunction and POTS and related areas like low blood volume as I know something goes on with me around these things. My internsit said that is why I rally when I get IV fluids as my daughter said. She was the one who said to increase salt along with being sure to get a gallon of water a day. This simple treatment did reduce incidents I was having. Still have the chest ache.

http://en.wikipedia.org/wiki/Orthostatic_hypotension

Annie59