NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Had to get a port (https://www.neurotalk.org/myasthenia-gravis/14067-port.html)

Gabe 05-08-2007 08:18 PM

My neurologist said that the sub-q is too new and hasn't been proven in long term trials to be as effective as IVIg for Myasthenia...

I still don't love my port...it is quite irritating still. The wire in my neck seems to be in just the wrong spot when I am trying to go to sleep. I'm skinny and have a bony chest so it is quite prominent and just under my skin. I prefer it to the 5 needle pokes and infiltrated Iv's though.

loisba 05-09-2007 02:54 PM

Thanks for the update, Gabe. I had been wondering how things were going with your port. I guess you're just not "port-ly" enough for comfort. :D Sorry about that, just can't resist a good pun.
Hugs,


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