Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 05-08-2007, 08:18 PM #11
Gabe Gabe is offline
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Gabe Gabe is offline
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My neurologist said that the sub-q is too new and hasn't been proven in long term trials to be as effective as IVIg for Myasthenia...

I still don't love my port...it is quite irritating still. The wire in my neck seems to be in just the wrong spot when I am trying to go to sleep. I'm skinny and have a bony chest so it is quite prominent and just under my skin. I prefer it to the 5 needle pokes and infiltrated Iv's though.
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Old 05-09-2007, 02:54 PM #12
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loisba loisba is offline
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Thanks for the update, Gabe. I had been wondering how things were going with your port. I guess you're just not "port-ly" enough for comfort. Sorry about that, just can't resist a good pun.
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