[craftyRCC]

Like so many I am new to the forum and new to MG. I have found a wealth of information and support on this board. A simple THANK YOU just doesn't seem like enough sometimes!

I would love to compile a list of names to personally thank each and every one of you, but I'm so afraid I would miss someone!

But I do want to say a special THANK YOU
to alice md. She has been such a voice of reason when so many of us go down a crazy path. We think of ways to fatigue ourselves in the hopes of "better" SFEMG results. We doubt ourselves and sometimes second guess ourselves. We've even placed blame on ourselves for not being "better" patients or for our inability to "clearly" explain our symptoms to our doctors! When along comes alice md, with her extensive medical knowledge and personal experience, she always has a link, information, or an experience that helps us all better understand this crazy disease! Many of us have asked questions of her instead of our doctors for fear of ridicule or a silly look!

So for all your help I say THANK YOU, THANK YOU, THANK YOU!

Rachel

[Stellatum]

Yes, thank you, Alice! You gave me hope way back when my first SFEMG came back "borderline" and my blood test negative. I am now wondering whether people in my situation should have the special stimulated SFEMG on the face that I had. Even though I have no symptoms on the right side of my face, that test came back clearly positive for me.

Abby

[alice md]

I am glad if I can help someone in real life or cyberspace.

As to the SFEMG, I have written ad nauseum about this test and all its variations.

It does make life easier if it is diagnostic, but in some patients it just isn't.
no matter if they stand on their head, put on a fake nose or jump up and down (if they still can).

there are many possible reasons why it is normal in some patients with MG, but the reasons don't matter, what matters is the fact. some patients with clinically evident myasthenia (typical or less typical) will have a normal SFEMG. and its not because they (0r their neurologists) did not try hard enough to get a diagnostic test.

this is a fact of life that people have to accept, just like the fact that there is no real Santa-Claus (sorry if I ruined it for someone).