FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
12-19-2010, 01:09 PM | #1 | ||
|
|||
Junior Member
|
I had my SFEMG on this past Friday, and all came back normal. Really really normal. No one is at all sure what that means right yet, but more on that later.
What I really wanted to let folks know is that I HIGHLY recommend the IU Med Center Neurology Clinic. The Dr. who did my tests ( pm me if you want more info) was awesome and amazing. He had a fellow with him, who was learning, and did some of the locations under his supervision ( you have to learn), but then the senior Dr did the testing as well. They were both very concerned with keeping me warm, checked thoroughly with an infrared tester, shared the tests results and explained them in great detail. They took their time, did not rush. Let let me ask questions and when I brought up hypothesis about possibility of SCS, did not in ANY way discount me, laugh and brought it directly into consideration. I was MUCH impressed with the knowledge and thoroughness they had and would very much recommend them for anyone needing specialized testing. |
||
Reply With Quote |
12-22-2010, 12:00 AM | #2 | ||
|
|||
Member
|
Quote:
You can PM me if you'd like. |
||
Reply With Quote |
12-22-2010, 03:27 PM | #3 | ||
|
|||
Member
|
What does UI stand for as if UI medical center. Reason I ask is that tells me what state you are talking about a good doctor in.
Annie59 Quote:
|
||
Reply With Quote |
12-22-2010, 09:50 PM | #4 | ||
|
|||
Member
|
Quote:
|
||
Reply With Quote |
12-23-2010, 05:24 AM | #5 | ||
|
|||
Junior Member
|
Yep, It was indeed Dr K. He should be training all neuros ;-)
It is obvious he was my local Neuro's teacher.. the bedside manner and caring are evident. next steps are unsure, my local neuro is out for the holiday ( although he answered an email from me earlier this week), my next appointment is Jan 5. Until then, I am trying to chill into a holding pattern and enjoy the holidays. Keep note of symptoms for discussion |
||
Reply With Quote |
12-23-2010, 11:57 PM | #6 | ||
|
|||
Member
|
I'm glad you had such a good experience with him. Out of all of the neuros I have seen, he was one of the most knowledgeable and caring.
Let us know how your follow-up appointment goes. Enjoy the holidays! |
||
Reply With Quote |
12-27-2010, 01:53 PM | #7 | ||
|
|||
Member
|
Thank you Shalynn. I am half way from the middle to Mississippi in Iowa. Yes it may be an option when the money is saved. I am making alist of things to sell on Ebay. I have a wonderful set of pearls with a sapphire clasp that is the best thing to sell. I got it for my 21st birthday. Interesting waht one is wiiling to do.
Annie59 |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Any pillow recommendations | Thoracic Outlet Syndrome | |||
New. Need NL recommendations. | New Member Introductions | |||
Recommendations for Lift | The Stumble Inn | |||
Any recommendations on... | Vitamins, Nutrients, Herbs and Supplements | |||
Book Recommendations | Gluten Sensitivity / Celiac Disease |